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my son chrisopher lee

meilissa christian

26/02/2010 12:28pm

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I HAVE A 4 YEAR OLD SON AND HIS NAME IS CHRISTOPHER. I HAVE BEEN DOING ALL KINDS OF TESTING ON HIM FOR SEIZURES. HE WAS DIAGNOSED WITH EPILEPSY, GRANDMAL SEIZURES, DROP SEIZURES. I DONT KNOW WHO TO TALK TO BUT I THINK HE HAS NARCOLEPSY. HE KEEPS HAVING ALL KINDS OF SEIZURES. HE GOES WEEKS WITHOUT THEM AND THEN HAS THEM. IM FLUSTERED AND DONT KNOW WHAT TO DO HE HAS MEDICINE AND THEY ARE CAUSEING HIM TO HAVE CAVITIES BUT IM COMFUSED PLEASE HELP THANKS A VERY WORRIED MOTHER FOR THE HEALTH OF HER SON CHRIS

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2 Comments

  • Diane

    01/03/2010 4:21pm

    My daughter has intractable seizures and has all types like your son - gran mals, drop, petit, focal, even anger outbursts are connected to her seizure activity. She is on many different meds so I understand what you are going through. We were in a car accident when she was 3 wks old but the seizures didn't really start until she was 7. She would go a while and then they would cluster. Contace me if you need to talk. She is 34 now and still has 80-100 a month and I have been through everything and now am on the Board of a Ronald McDonald House because I do understand.

  • Jenny

    26/02/2010 5:09pm

    I pray you will find help and i am sure someone will find answers for you.

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