Your stories
Everyone has a story. And this holds especially true for all of you connected to RMHC. You have high points and low times. You have setbacks and rallying spirits. You have tales of inspiration and stories of encouragement.
Share your story with others so they can inspire, encourage, and comfort families across the RMHC community.
Sort stories by:
-
My niece was just diagnosed with leukemia this past Sunday. She is 4 and will be 5 on the 16th of this month. She is in the hospital in laff. Louisiana. She is on her second blood transfusion right now.
-
I love McDonald
-
When I went into labor in February 2008, I was only six and a half months pregnant. Although our son Jonah was born weighing almost six pounds and twenty one inches long, he was unable to eat, or to breathe very long on his own. After he was flown to Kosair Children's Hospital in Louisville, KY, we spent the first two nights at a nearby hotel. However, this quickly became much too expensive and thanks to the staff at Kosair and at RMH Louisville, my husband and I soon had a place to stay for the following month. Being two hours from home, it was nice to be within walking distance of the hospital. The Ronald McDonald House gave us a warm, safe, and clean place to sleep and the volunteers there provided many good meals when we had so many other things on our minds. We are forever grateful.
Thank you so much.
Jenny, Jeremy, Justin, and Jonah Smith
-
November 30, 2011
To Whom it may concern:
My daughter is B. Campbell and her son (my grandson)is C. Campbell who is a patient at Rudy Children Hospital in San Diego .
My grandson is 10 years old and is diagnosed with Prader Will Syndrome which is a genetic disease that he was born with . The affects of it is many and is also life threatening if not carefully managed. One of the affect is server curving of the spine (Scoliosis )
It is also known hospitalization of a Prader Willi patients is taken at a higher level of concern due to many complication that occur from the syndrome and these complication are life threatening .
My grandson was admitted into the Children Hospital on October 31, 2011 for surgery of his spine. This surgery was necessary due to the fact that it was interfering with his heart, liver and other organs. The surgery took approx 12 hour and done in two parts. At the end of surgery the results would be partially unknown and he would be held in the ICU unit for recovery. It was also unknown to how long he would be in ICU unit.
Because my daughter her husband and their two children live 130 from the hospital the Ronal McDonald House was offer to them on October 31, 2011. It was a great experience and was truly needed. The staff was supportive, caring and understanding to our grief of having a ill child in the hospital. My daughter has two other children who are at school age, 5 and 4. The have never been separated from their mother or father for a long period of time. Therefore being able to keep the family together daily and still allowing the children to attend school daily was the biggest reward. It would have been imposable to drive 130 mile each day to take the children to school and also impossible to meet the needs of all her children if she didn’t have the Ronal McDonald house to stay at.
On November 9, 2011 my grandson was released from the hospital however the discharger procedures did not go as smooth as we would have liked. It appeared that the discharge social worker forgot to order my grandsons body brass and other e necessary equipment for the care and safty of his care while recovering at home.
In our disbelief of this carelessness discharge we reported this problem to management with the desire of having it resolved and also so that this kind of discharge would not happen to other patients in the future.
On November 16, 2011 my grandson was readmitted back into the hospital due to complication in his recovering. He had surgery the following day and 3 more surgeries followed only days apart . Recovery complication are highly likely to happen due to the Prader Willi Syndrome [Read More]
-
This is going to be a long one..I would like to share my story with friends and family and also those who I call aquaintences. As everyone should already know or have seen I have heart issues as well as many other health ailments and I thought it would be good to share with others. Not sure why I feel it is necessary but I think it will help me cope with lifes plans for me. This is just the beginning I will finish this up here and there...I will continue when I get all the information from my mother from the start of my life on Thursday October 13th, 1977.
It starts like this...My mom was at work one day and she started hemmorhaging and had closed the store up and went to doctor...he had said that she might have been pregnant but if so she no longer was..so she had no idea I was coming...she left and when about her life...4 and a half months later on that Thursday I was born 5lbs 2oz at 22 inches at Keier Hospital in Bellflower California. They were unsure whether or not the hemmorhaging she had was my twin or not. Anyhoo, I was diagnosed with Pulmonary Atresia with a pantent ductus.Pulmonary atresia is a congenital malformation of the pulmonary valve in which the valve orifice fails to develop. The valve is completely closed thereby obstructing the outflow of blood from the heart to the lungs. Also born with Dextrocardia with Situs Inversus...Dextrocardia with Situs Inversus is a rare heart condition characterized by abnormal positioning of the heart. In this condition, the tip of the heart (apex) is positioned on the right side of the chest. Additionally, the position of the heart chambers as well as the visceral organs such as the liver and spleen is reversed. This in easy terms means all my insides are reversed and on opposite sides and my heart is kind of in the middle of my chest and positioned facing to the right. I only have one actual functioning lung which makes my oxygen level very low...it is around 77% when a normal persons oxygen level is 90-100. Now pple will understand WHY I get out of breath all the time, or why I cannot do much of what all you normal healthy people can do LOL..I get tired walking a flight of stairs and sometimes even just a simple shower.
First Operation...I am going to try to explain this to the best of my knowledge until I get all my medical papers... One year and 13 days after I was born (1 yr and 13days old) I had an operation and this is what is stated as...Left Throacoto surgery which is ...Thoracotomy is an incision into the pleural space of the chest.[1] It is performed by a surgeon, and, rarely, by emergency physicians, to gain access to the thoracic organs, most commonly the heart, the lungs, the esophagus or thoracic [Read More]
